Well I finished all 10 radiation treatments to the spine. It hasn’t been easy. I have absolutely no appetite and when I do eat, I get ill. I finished radiation almost 2 weeks ago now and I still can’t eat. I vomit daily, and the fatigue is pretty tough. I lost 27 pounds in 3 weeks. Not that I don’t have it to lose, I did gain 65 pounds with chemo/steroid treatment so I can spare it. It just increases fatigue significantly when you have no fuel.
A little more on the scary side, 3 nights ago I had a pretty bad headache that went along with some confusion. I thought I was in my bedroom, but I was in my son’s old room. Then I proceeded to figure out how to get to the bathroom to get sick again. The doc says it is all from the radiation and it should go away the more time away from radiation I have.
I had another scan too, and my tumors in my lungs grew slightly by like 4mm each. I will get the results of the brain MRI on Monday to see if the gamma knife worked.
In the meantime the next plan is for a different clinical trial. A drug that is already approved in Europe, but not here yet. The one thing that sucks is that it is in the stage of trial where I might be given a placebo. So I am just going to hope that I get the real drug and that it works for me. They keep mentioning how very slow-moving my cancer is and how good that is. But I can’t help but be a little worried because it went to my brain and my spine. Time for new drugs to make their way down the pipeline and work for me.